Well, it's about 4:30 in the morning, and Josie and I are just sitting here! Today is her surgery day to have her med port placed. I have been dreading this day for a week now. I just wish that she did not have to go through this, I would give anything to trade her places and do this for her. I swore to myself and her that after 100 days in the NICU, I would never leave her again, and now, I have to hand her off to some stranger to do this surgery to her. Honestly, I am just sick... Her and I have been up for a little while, and I just get this huge lump in my throat whenever her little blue eyes look into mine. If I could just make this better for her!
Soon, it will all be over and she will be back to being the happy little princess she is... I will update you all as soon as I get access to a computer, but I have one more favor to ask.
Please as you have all done sooooo many times in the past, please, please pray for her. I know that my grandfather will be watching over her today, but the prayers of others are always helpful...
Thank you all so much...
Thursday, July 23, 2009
Saturday, July 18, 2009
Bump In The Road......
Well, Josie was not able to get her last infusion. It is just toooo much for her. So, on Thursday at 2:00 p.m. she will have surgery to have a port put in. Things were just going to smoothly, there was bound to be a bump in the road. I just wish that I could trade her places and do this for her. When is enough enough for her. She has been through so much, it's just heartbreaking.
Every Dr. has said that this is the best route for her in the long run, and the way that I look at it is, we have trusted them this long, so we can't lose faith now, right? A girlfriend of mine gave me a new quote, and i just love it...
"If God brought you to it, then God will get you through it". That is the truth.
I know that she is a strong little girl, but it is just so scary. Just the idea of surgery and what she will feel makes my stomach turn.
I'm just glad that she will never remember this. Once we get through this, we will be back on the road to happy and healthy.
She is 9 pounds 8 ounces....
Cooing, and smiling all the time. She is just absolutely amazing!!!! So we are asking once again for you all to please keep her in your prayers!
I will update you more as we get it....
Thanks soooo much.
Love to all.......
Every Dr. has said that this is the best route for her in the long run, and the way that I look at it is, we have trusted them this long, so we can't lose faith now, right? A girlfriend of mine gave me a new quote, and i just love it...
"If God brought you to it, then God will get you through it". That is the truth.
I know that she is a strong little girl, but it is just so scary. Just the idea of surgery and what she will feel makes my stomach turn.
I'm just glad that she will never remember this. Once we get through this, we will be back on the road to happy and healthy.
She is 9 pounds 8 ounces....
Cooing, and smiling all the time. She is just absolutely amazing!!!! So we are asking once again for you all to please keep her in your prayers!
I will update you more as we get it....
Thanks soooo much.
Love to all.......
Sunday, July 12, 2009
5 MONTHS OLD~~~~~~~~
WOW, JOSIE IS 5 MONTHS OLD TODAY!!!! Where has the time went. It still feels like only yesterday that she was brought to us so early... I still have a hard time sometimes realizing that everything is ok!!! I guess things were just bad for toooo long, and now, she is doing exceptionally well.
We just stayed around home today. My cousin had her daughters 1st birthday party today, but we did not attend, I was a little nervous of taking her around all those little ones, so we just stayed home and enjoyed the day!!
She is doing great, good reports from all Dr.'s so far, so we will keep praying that things continue to do so well for her. She definitely deserves it.
As for Easton, he loves her more and more each day. It brings tears to my eyes when I see them together. When he holds her hands when she's crying, or if he has to hug and kiss her when he leaves the room, these are the best days of my life.
These 2 little children have brought me such happiness, I can't even begin to explain. I think Easton matures by 5 years each night in his sleep. He just totally amazes me. He is wonderful....
Dusty is great, busy working, trying to make up for some of the time that he has missed in the last 5 months, but he'll get there.
We have a couple date nights planned, in September, we are both in a wedding, and then in November we have the Army's military ball. So that gives us a couple nights to ourselves. MY Mom and Dad are the lucky ones who get to entertain the kids overnight those two nights. LOL They will ALL have a blast.
Hope you all are enjoying your summer, take care and be safe. Love to all!!!
We just stayed around home today. My cousin had her daughters 1st birthday party today, but we did not attend, I was a little nervous of taking her around all those little ones, so we just stayed home and enjoyed the day!!
She is doing great, good reports from all Dr.'s so far, so we will keep praying that things continue to do so well for her. She definitely deserves it.
As for Easton, he loves her more and more each day. It brings tears to my eyes when I see them together. When he holds her hands when she's crying, or if he has to hug and kiss her when he leaves the room, these are the best days of my life.
These 2 little children have brought me such happiness, I can't even begin to explain. I think Easton matures by 5 years each night in his sleep. He just totally amazes me. He is wonderful....
Dusty is great, busy working, trying to make up for some of the time that he has missed in the last 5 months, but he'll get there.
We have a couple date nights planned, in September, we are both in a wedding, and then in November we have the Army's military ball. So that gives us a couple nights to ourselves. MY Mom and Dad are the lucky ones who get to entertain the kids overnight those two nights. LOL They will ALL have a blast.
Hope you all are enjoying your summer, take care and be safe. Love to all!!!
Saturday, July 4, 2009
Happy 4th Of July ~
Happy 4th of July, and also Happy Birthday to my husband. Josie got to experience her first set of fireworks last night at Seneca Lake, and then tonight in Caldwell. We stayed in the van, but it was so great for the 4 of us to all get to go together. Easton loved them, and Josie slept right through them. Go figure. Next year they both will be running around, and we won't be able to get them to sit or sleep. LOL
While we were there tonight I got to see some family friends that I have not had the chance to see since Josie was born. One coached my softball team, and the other was my girl scout leader when i was a little girl. They see my mom quite often and ask about my kids all the time. So, it was very nice to see them and their entire family tonight. I think that we all had a moment when we first saw each other. So, to the Franklins, thank you so much for all your prayers. It was great to see you!
Other than that, nothing really going on. Hope you all have a Happy and Safe 4th.
While we were there tonight I got to see some family friends that I have not had the chance to see since Josie was born. One coached my softball team, and the other was my girl scout leader when i was a little girl. They see my mom quite often and ask about my kids all the time. So, it was very nice to see them and their entire family tonight. I think that we all had a moment when we first saw each other. So, to the Franklins, thank you so much for all your prayers. It was great to see you!
Other than that, nothing really going on. Hope you all have a Happy and Safe 4th.
Thursday, July 2, 2009
Thursday!
Well, we had our second appointmet with the pulminoligist today, and he said that she is growing beautifully! She weighes 8 pounds 14 ounces... What a ham...................
She is still on the 8th of a liter of oxygen, and he wants to keep her on that for a little while longer just so that she can put all her effort into eating and continue to grow well. He's afraid that if he takes the oxygen away, then she will have to put so much work into breathing and eating that she will not continue to gain as well as she has. So, he knows best... I think she likes that thing in her nose anyways. LOL
As for her infusions for her immune deficiency, we were not as lucky. He said that the blood work that he drew was not good. Meaning that her levels for her immune system are extremely low.. These infusions are something that she might have to do for a very long time, and possibly forever. If the nurses have a hard time with the IV again, the she MIGHT have to go to Akron's Children and have surgery to have a port put in. I hope and pray that we do not have to put her through that. PRAY, PRAY, PRAY!!!!!
So, that is the bug news for now. She is just loving life right now....
We hope that you all have a Happy and safe 4th of July... Dusty's birthday is July 4th, so Josie will get to attend her first birthday party!!!
Happy 4th!!!!!!
She is still on the 8th of a liter of oxygen, and he wants to keep her on that for a little while longer just so that she can put all her effort into eating and continue to grow well. He's afraid that if he takes the oxygen away, then she will have to put so much work into breathing and eating that she will not continue to gain as well as she has. So, he knows best... I think she likes that thing in her nose anyways. LOL
As for her infusions for her immune deficiency, we were not as lucky. He said that the blood work that he drew was not good. Meaning that her levels for her immune system are extremely low.. These infusions are something that she might have to do for a very long time, and possibly forever. If the nurses have a hard time with the IV again, the she MIGHT have to go to Akron's Children and have surgery to have a port put in. I hope and pray that we do not have to put her through that. PRAY, PRAY, PRAY!!!!!
So, that is the bug news for now. She is just loving life right now....
We hope that you all have a Happy and safe 4th of July... Dusty's birthday is July 4th, so Josie will get to attend her first birthday party!!!
Happy 4th!!!!!!
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