Well, Josie continues to amaze us all. Almost 13 pounds, and is just a joy. She is wound for sound the moment her eyes open, just like her big brother Easton. Had her appointment with the pulminoligist Friday, and he wanted to take her off the oxygen completely, but I, as her mother, did not feel that she was ready for that. I don't want to rush her. She does great when it's off, but there are times that I KNOW she needs it. I have decided to just slowly ween her off, I let her have as much freedom as I think she need with it right now.
I have become a very active person with the March of Dimes since the birth of Josie. I guess I just feel that if I can help prevent one baby from going through, and fighting, like Josie did, then I will be happy. I have been working with Nikki from the Canton March of Dimes, and her and I are meeting with the corporate people next week, and getting a walk in our local area. I have set up our first support meeting for parents and family members from our area that have dealt with prematurity, birth defects and infant mortality. Our first meeting is scheduled for Thursday. I hope it's a huge success. We will be organizing the walk here, working on fundraising, and letting people know what they can do when there are faced with these certain obstacles.
Other than all that, we are all doing great. Just enjoying life with my children, and watching them grow and learn new things everyday.
I am asking for special prayers tonight, for a little baby boy that was born a week ago at 30 weeks. His name is Boston and he weighed 2 pounds 3 ounces and was 15 inches long. He was transfered to another NICU today, because he has to have surgery in the morning for a bowel obstruction. Please keep him and his family in your thoughts and prayers. We ALL know that the POWER OF PRAYER is amazing!
Sunday, September 20, 2009
Wednesday, September 16, 2009
September-
Well, hard to believe that Josie is 7 months old now. Where has the time went? She is doing great. Still using the oxygen when she eats and sleeps,and sometimes if she wears herself out. She is on the go all the time, and her and Easton keep me on my toes.
She is just a little over 12 pounds now, and is growing like a weed. Crazy to look back at how much she has grown in the last few months.
Still getting her infusions once a month, but now that she has had the med port put in, it is much, much easier. It was hard to have to have her go through that but it really has benefited her the last couple times. She doesn't even know that she has been stuck with that HUGE needle, she just lays there smiling, sucking her fingers.
She loves to roll around, and loves to sit up, with a little help still, but that's ok, she is definitely getting the hang of it. She amazes me more and more everyday.
I have been working on my speech for the March of Dimes fundraiser coming up in October. It will be the first time that I have told her story to anyone other than family, but I am really looking forward to it. Also, we are working with the March of Dimes to have a walk in our local area. We are just starting, so no dates have been set yet, but as soon as they are, I will definitely post them. Also, a friend and myself who both have had preemie babies are thinking of starting a support group locally, not only for preemie parents and their families, but parents who's children have birth defects, and also parents and families who have lost their little angels. We are hoping that this will be a great success! The March of Dimes needs to be recognized, and we are hoping to help. I know deep down that if it had not been for the courageous strength of little Josie, the wonderful staff at Aultman hospital and the March of Dimes, Josie would not be with us today, and we as a a family will FOREVER be grateful to them all.
I have been looking through my pictures the last few nights getting them in order, and to this day, I still find it hard to swallow at times. I look and just think how in the world did we get through that. It really is a distant memory, until I look at those pictures.
She is absolutely amazing, and grows so much day to day. She looks and acts so much like Easton. They are going to be great buddies, I just know it. Hopefully they don't gang up on Dusty and I too much. LOL
So, we hope that you all are doing great, and we will update more as we get it. Thanks and Love to all who have been there with us the last 7 months, you know who you are, and we will always remember you all.
She is just a little over 12 pounds now, and is growing like a weed. Crazy to look back at how much she has grown in the last few months.
Still getting her infusions once a month, but now that she has had the med port put in, it is much, much easier. It was hard to have to have her go through that but it really has benefited her the last couple times. She doesn't even know that she has been stuck with that HUGE needle, she just lays there smiling, sucking her fingers.
She loves to roll around, and loves to sit up, with a little help still, but that's ok, she is definitely getting the hang of it. She amazes me more and more everyday.
I have been working on my speech for the March of Dimes fundraiser coming up in October. It will be the first time that I have told her story to anyone other than family, but I am really looking forward to it. Also, we are working with the March of Dimes to have a walk in our local area. We are just starting, so no dates have been set yet, but as soon as they are, I will definitely post them. Also, a friend and myself who both have had preemie babies are thinking of starting a support group locally, not only for preemie parents and their families, but parents who's children have birth defects, and also parents and families who have lost their little angels. We are hoping that this will be a great success! The March of Dimes needs to be recognized, and we are hoping to help. I know deep down that if it had not been for the courageous strength of little Josie, the wonderful staff at Aultman hospital and the March of Dimes, Josie would not be with us today, and we as a a family will FOREVER be grateful to them all.
I have been looking through my pictures the last few nights getting them in order, and to this day, I still find it hard to swallow at times. I look and just think how in the world did we get through that. It really is a distant memory, until I look at those pictures.
She is absolutely amazing, and grows so much day to day. She looks and acts so much like Easton. They are going to be great buddies, I just know it. Hopefully they don't gang up on Dusty and I too much. LOL
So, we hope that you all are doing great, and we will update more as we get it. Thanks and Love to all who have been there with us the last 7 months, you know who you are, and we will always remember you all.
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