Sunday, May 31, 2009

Sunday Night

Well, the weekend is over. Is sure was beautiful out. We went to my MOm and Dad's, and Easton ran wild!!!! My grandma who was here from New York visiting is leaving in the morning. Months. months ago, she decided to come so that she could be here in May when Josie was born, but as we all know Josie decided to come a lot earlier then that. It is soooo hard to say good bye, and she just loves the kids so so so much. She is planning on coming back in September and staying the winter, so we will be looking forward to that. I love when she comes, and hate when she leaves. Easton just loves her so much, he will not understand why she is not here. It has been so amazing to have her here, and be here for Josie's homecoming!
Josie is doing great! Eating 3 ounces every three hours. She is such a pig! She has changed so much since we brought her home. It's amazing! She weighed 7 pounds on Friday, so I can't wait to see what she weighs in the morning! I have lots of new pics, just gotta get the time to put them all up! LOL It's a little rough with her and Easton sometimes, lol, but I wouldn't trade it for the world!!!!

Friday, May 29, 2009

Friday- One Week Since Homecomng!

It has been one week since Josie finally made it home. What a week it has been. She weighs 7 pounds .4 ounces today, She is filling out so much. She is doing wonderful, they say that when they come home, they blossom, and she has definitely done that.
She basically just sleeps and eats, she is starting to have a little more awake time, but with her chronic lung disease, eating is a lot of work.
She failed her hearing test, so they are afraid that with all the medicine that she was on, she might have some hearing loss. We got to Akron Childrens on Wednesday, and we will know more then. If she does, then we will deal with it. At this point, I am just so thankful to have her home in our arms, I can handle that. We will be just fine.
We have a lot of Dr.'s appointments in the next few weeks, but I will post as soon as I have the time. Easton and Josie keep me pretty busy.
Easton is doing well, still adjusting, but that is to be expected, we can't forget that he's only 2!
Dusty and I are doing great, It's nice to spend time together and all be in one place and not running different directions. Life is good!!!!!!
I'll update more later!

Wednesday, May 27, 2009

Wednesday Night

Hello everyone. Hope everything is well with you all. Josie is doing great. We went to the Dr. today and she weighed 6 pounds and 12 ounces!!! She is doing great! We have the oxygen and the Apnea monitor, and that is a little challenging at times, but it could be so much worse.
Off to the Dr,'s again next week.
Just staying around home and enjoying the kids. The last week has been so great....

Monday, May 25, 2009

Happy Memorial Day!

So, we hope everyone had a safe and happy memorial day. We had a cookout at my Mom and Dad's, and just enjoyed everyone being all together. This was Josie's first holiday at home, and yup, she slept right through it. LOL
She has had some visitors, and everyone has laughed at me. I have told everyone that we would appreciate if they would shower right before they come , and that when they get here they have to wash, and use hand sanitizer. Everyone comes in saying "We know the drill." Thank you guys for all being so understanding. We just want to be as careful as we can.
Easton is doing great with her. He calls her belly button hernia a wackie, and then he has to pull his pants down and show everyone that he has one too... I can't wait to tell him that story when he's older. He has done a wonderful job adapting to all this new stuff.
Josie is doing good. Changing every day! I will post pictures soon.... Thanks for everything everyone. We really appreciate it

Sunday, May 24, 2009

Sunday Night

Wow, what an amazing couple of days we have had. We got home around 3:00 p.m. on Friday, and we have just been enjoying our time as a family. She has done so well adapting to being home. She is eating GREAT, and growing like a weed. We are just so relieved to be home.
Easton has done so well, he has gotten a little rough a couple times, but other than that, he has done great!
It was a little hard to leave the NICU, they have become our other family, and we are so grateful for them.
For now, we will just enjoy our time as a family, I will post things as I can. LOL Sometimes it gets a little hectic around here. lol......
Thanks for all your prayers, I'll post some pics soon! Love To All...............

Friday, May 22, 2009

WE SURVIVED THE NICU!!! Friday Morning

So, today is here, and it is one of the most amazing days of my life. Finally after 100 long, long days in the NICU, and days of sitting in the chair holding Josie watching families come and go out of the NICU, it's FINALLY our turn. We will make our last trip to the Aultman NICU today. We will bring our little miracle home. Josie weighs 6 pounds 5.3 ounces and is doing great! She will get to meet her family today. I think that this is the most emotional day that I have had in a long time. I am just so excited to be able to walk out of there today, it is so hard to explain. For those of you who have lived in the NICU experience, you know just what I am feeling, and for those who have followed our journey, you can only imagine. I thank each and everyone of you for all your prayers, I know that I have said it before, but I will say it again. We really believe that it is the power of prayer that has made it possible for Josie's homecoming today..
So, we will leave here around 7:30 a.m. and get to Aultman around 9:00 a.m. and then shortly after that it will be my turn to become her full time Mommy, FINALLY!!!!
I think that a million people have asked me if I am nervous because Josie is going to come home on the oxygen and the apnea monitor. My answer is that, "No, I'm not nervous, but I am aware and on my toes, and will be for months an months to come. I am going to enjoy my 2 children, and make as many memories that I can with them. I am looking forward to holding both my babies today, and come home, and have us all under one roof."
So, I will post later tonight, when the kids are asleep, and tell you all about our day.
Thank you again to ALL of you, we love you all.....

Wednesday, May 20, 2009

Wednesday Night

Well, Josie is doing great, and as far as we know, Friday is the big day. Finally after 3 1/2 months we are able to bring her home.
I have a lot to do, I am going to be her mom, and her nurse, but I am so ready, and i know that I can handle it. I just need her home.
So, I was rocking Easton tonight, and it dawned on me that tomorrow night will be the lase night that it is just the three of us. Don't get me wrong, we all want her home, but it is just a change, a good change, but it's change...... Easton is such a smart little boy, he is going to be just fine. He is potty training, and he is doing awesome, NO accidents in 4 days..... We are so proud of him.. It's hard to watch him grow up, I just wish he could stay small forever! He has done so well through all of this, it's just amazing to me how well he adjusts.
So, all my cleaning is done, and I will be receiving her oxygen and her apnea monitor tomorrow morning and then I am taking it to the hospital.
I said a few goodbyes to the nurses today that will not be there the day we go home. It was soooooooo hard, harder then I could ever imagine. The Nurse Practitioner that put Josie on the vent the night that she started to get so sick, Fran, we had a very emotional moment. I really feel that she saved Josie's life, that is she had not seen all the signs, then Josie might not be here. She will forever hold a very special place in our hearts.
So, were almost there. I can't believe that I actually survived the NICU! What a roller coaster! Friday will be the 100th day that Josie was in the NICU.. 100 DAYS! That is just crazy, but here we are preparing for her homecoming, we truly are blessed, and our prayers were definitely answered!
Again, we thank each and every one of you for your prayers. We love you all...

Tuesday, May 19, 2009

Early, Early, Wednesday Morning (12:45 a.m.)

Well, I am just sitting here with a million things running through my head, I can't even sleep.... It is so hard to believe that we are going to be bringing Josie home soon. I am just so thrilled.. It will be great to have her home, and be her full time Mom now..
We will miss the nurses so much, they have became part of our family, so therefor, it will be hard to say goodbye. They are all amazing people, and we will forever hold a special place for them in our hearts!
I think all my stuff is done for her homecoming, all I have left is to shampoo carpets, and I am going to do that tomorrow night. I just hope that we have everything that we need.
So, I am going to sit and relax, and enjoy this quiet time, I have a feeling I won't get to much relaxing done in the next few weeks, we will ALL be adjusting to all these new things going on..
It is true Barbie, all our prayers have been answered. Thank you to everyone who has prayed for her the last few months, you all are so dear to our hearts, and we can't wait for you all to get to meet Josie one day.....
Love to you all!!!!

Tuesday

Well, It looks like all our dreams and prayers are about to be answered! As of right now, if everything keeps going good, and Josie keeps eating well, then we will be home FRIDAY!!!! I am so excited, I just can't hardly breath. We have waited soooooo long for this.
I have dreamed about this day for a long long time, and now, it's here. It is the most emotional thing I have ever done. It has been such a roller coaster, but it has made me a lot stronger. You know that saying, What don't kill ya will only make ya stronger....... THAT'S FOR SURE.....
So, as long as things keep going well, and she doesn't tire out, we will be home sweet home.... We will be quarantined to the house for the next year, but it will all be worth it. LOL
I went to WalMart today, it will probably be the last time I'm there for a year, ok, so that's a little overboard, but it will definately be a long time. Who cares as long as the four of us are together each and every night from here on out!
I would like to thank you all for your prayers, please continue until we are home safe and sound... Thanks, and love to all.

Monday, May 18, 2009

Monday Night

Well, they took Josie's feeding tube out today, and they are going to see how she does without it, eating all her bottles, I'm not sure though, she gets very tired after a while, but time will tell. She has done great today, I'm just not sure how she will do in the middle of the night.
She weighs 6 pounds 3 ounces, and is getting bigger and bigger each day.
Josie's little boyfriend Cooper that went home a couple weeks ago, his mom, Kristen came to visit me today at the hospital, that was nice, we talk all the time on the phone, but it was nice to see them again.....
So, if Josie does what we think she will and can eat all her bottles, then we are looking to be discharged on Friday, as long as she is eating all her bottles. I'm not going to get my hopes up to high yet, just in case she's not up to all that yet... I am ready for her to come home, I just want it to be the right time, because I am NEVER taking her back.... lol ok, only to visit...........
Please pray that she has the strength to eat all those bottles, so that we can bring her home on Friday.........
Thank You soooooooooooooooooooo much.....
Love to all!!

Saturday, May 16, 2009

Saturday Night

Well, Dusty and I just got in from seeing Josie. It is sooooo hard to leave her. I will be so glad when we get the call that we can bring her car seat and bring her home. It's coming, I just am very impatient! LOL
She is doing good. She ate a bottle for me at 4, and then they will try with her at 10. Hopefully she does well. We are trying a new nipple, so maybe she will do a little better! She weighs 6 pounds and 2 ounces tonight! She looks so good. She is getting to be a little chunky actually! LOL
Other than that, no news, just waiting to bring her home....
I'll let you all know as soon as we do, TRUST ME!!!!!!!
LOVE YA ALL!!! THANKS FOR ALL YOUR PRAYERS!!!!!!!!!

Friday, May 15, 2009

Friday afternoon...

Well, Josie is eating a little better today. She just got another infusion of her artificial immune globilins. These help her immune deficiency! She also got her hearing test done and she ............PASSED!!!!!!! Thank god, I was a little worried with all of those antibiotics, and we were told that there was a possibility that it could cause hearing impairment, but it didn't, so that is GREAT!!!!
She weighs 6 pounds 1 ounce as of last night, I forgot to put that in earlier! So, she is doing great. Hopefully we will hear an exact date on her homecoming SOON!!! As soon as I know, trust me, I will let you all know. LOL
Thanks for everything!

Friday Morning

Well, Little Miss Josie is taking it easy right now, she has kind of slipped back on her bottles. She is very very tired, which is to be expected with the chronic lung disease. They are offering it to her each time she is awake, and letting her eat what she will eat, but sometimes she just doesn't want anything to do wit it. It's ok though, she will get there. We've been patient this long....
Other than the feedings, she is doing great! Still on that 16th of a liter of oxygen...
Nothing new other than that! I will update you all later....
Thanks and Love Ya...

Thursday, May 14, 2009

Thursday Morning

Well, I just got off the phone with Josie's nurse, and she had a great night! She ate a whole bottle at 10:00 p.m., they tubed her at 1:00 a.m., because she was out like a light (me too, I think it's the first time I've slept good in 3 months), at 4:00 a.m. she at a little more than half, and at 7:00 a.m. she at another whole bottle. So far, she is doing wonderful.
They took her oxygen down to a 16th of a liter. YEAH!!!! That is almost nothing!
The Dr. told me yesterday that he wasn't positive anymore that she would come home on the oxygen. He said if we would have asked him a month ago, then he would have said absolutely yes, because of the way that her lungs are, but she is a strong little girl, so who knows, time will tell....
I am off to do a million errands today. Got a lot of things to do before our little princess comes home.
I will update you all later.
THANKS FOR EVERYTHING!!!!!

Wednesday, May 13, 2009

Wednesday Night

Well, today was amazing. Josie is doing remarkable! She is on an 8th of a liter of oxygen, and eating all her bottles so far. If she is sleeping at a feeding time, then we are not going to wake her up, we are going to just tube it still. She has accomplished a lot today, so we don't want to rush her. If she is awake, then we will offer it to her, but if not, then we will let her just rest. She is doing great when she does take it though!
I took her glider rocker up there today, so that she had something different, and she seemed to love it. She looks so small in it.
Also, I got to do something that I have waited a long time for. I painted her little tiny toenails today! They looked beautiful. It was so funny. The nurses all got a kick out of it!
So, all is great, and we are almost ready to bring her home....
I have waited so long for this day..
I will update you more. Please continue to pray for her!

Tuesday, May 12, 2009

Tuesday

Happy Birthday, and Happy Due Date to Josie. Today is her actual due date and she also turned three months old today. I stopped at Dr. Binkiewicz's office on the way to the hospital and gave him and Christy a couple recent pictures of Josie and took them some donuts. I had a little bit of a hard time, because I just wish that I could have carried her the whole 9 months, but everything happens for a reason.
Then, I got to the hospital, and Dr. Vazquez met me in the hall, and said Happy Birthday to Josie also, and told me the updates for the day. Josie is OFF all high flow, she is just on regular oxygen, actually a 16th of a liter. That's not very much, just a small wiff. LOL She is doing great, now she just has to conquer the eating, and we will be home sweet home. I can't wait, we are almost there.
The Dr.'s and nurses bought Josie a cake and on it read, Happy Due Date Josie, and they all came in and sang to her. The Nurse Practitioner Diana actually put some icing on her finger and gave Josie a taste.... It was an amazing day.....
Please continue to pray that we can bring her home soon... Thanks, and love to you all!!!!!

Monday, May 11, 2009

Monday

Well, I hope all you Mother's had a great Mother's Day. I did, it was just a little hectic. I spent the morning with Easton, and then the afternoon at the hospital with Josie. Josie and her nurse made me a mother's day present, they took a cut out pink foot, and put her little hand prints on it. It is so cute and I will treasure it forever! Easton got me a card, and signed it from him and Josie. I love my kids so much..
Josie is doing great, she is on ALL high flow now, 1 liter.... She is doing very well with that. Next step is just regular oxygen.... Which is what she will mot likely come home on, do to the chronic lung disease.... She weighed 5 pounds 14 ounces last night.. Hard to believe that her actual due date is tomorrow! She should just now be here, it's crazy that she's been here 3 months already! Everything happens for a reason!
They did her other eye exam yesterday, and right now, it's something we have to watch, they are detecting a little vision impairment at this time, but they said that there is a chance that it will even itself out in the next couple weeks, and basically just disappear! We will pray!!!!!
I'm not going to get to worried until they tell me to. If there is definitely something wrong, they can do a surgery and TRY to correct it, but with like anything else there is no 100% guarantee that it will work.. So, for now, we will just pray that it works itself out, and if it doesn't then we will deal with it! She also has a hernia in her belly button, but they are not concerned with that right now, that's something that we will just watch, and if it ever starts to give her any trouble then we will look more into it.
For now, we are just waiting on her to take to eating all her bottles, she gets so tired from eating her bottles because it's so much work, her lungs just get so wore out!
So, we are close to home, and it is the greatest feeling in the world....
I will update you all more later.
Thanks for all your prayers, please keep them coming!

Saturday, May 9, 2009

Saturday

Well, we are finally home. We did the March of Dimes walk, and we had a blast! It was beautiful out, and we all enjoyed ourselves. There was about 60 of us there, friends and family today, and we are so honored, and would just like to thank everyone from the bottom of our hearts for getting up so early this morning and driving to Akron, we truly appreciate it. Josie is blessed to have you all in her life, and so aren't we! I took a lot of pictures and even videotaped the walk, I haven't even had time to watch it yet, but I know it'll be great!
Dusty and I were asked to speak at a gathering in Akron in October, and tell Josie's story in front of like 300 people, they will do a slide show of her journey as I am talking, we can't wait. We are so honored to do this and represent the March of Dimes.....
Josie is doing great! Eating well with her bottle, and tomorrow she will go to ALL nasal canula!
She weighs 5 pounds 11.3 ounces.... Easton only weighed 5 pounds 13 ounces when he was born, she's catching up to him pretty fast!!!!
Keeping our fingers crossed that we will be able to bring her home soon!!!
Nothing other than that for now, I'll update more later...
Thanks again for all your support today, we love you all.....

Wednesday, May 6, 2009

Wednesday night

Well, I went to bed early with a headache, and when Dusty came to bed, he woke me up by accident, so I had him go call Josie's nurse and check on her for the night. He came back to bed, and said "Are you ready for this?" I said "Yeah, what's wrong?" He said "Josie just ate a whole bottle!!" I almost jumped out of the bed. I was sooo excited this is her 3 bottle, and she is already eating the whole thing (48 cc)! Then, he said that she did spit up at the very end, so I had to come and call the nurse and hear it for myself. Yup, it was true! The nurse, who is one of our favorites (Judy) was just as excited as we were! I know that to some being so excited about taking a bottle may seem a little strange, but for Josie, it's like hitting the lottery! HA HA HA!
Finally, something that comes easy to her, eating.... I wonder why????? It's all that Cobb in her, we sure can eat.... HA HA HA!
She weighs 5 pounds and 11 ounces tonight. Almost 6 pounds! Bye bye preemie clothes, hello newborn.
I will update you all more tomorrow, and please keep the prayers coming... Thanks, love you , night!!!!

Wednesday

Well, we are definitely heading in the fast path to dome. Josie is really doing great. She is up to eating 20cc with her bottle. She loves it! She is staying pretty steady with the nasal canula and c-pap. She actually gets a little aggravated when they put her on the c-pap, because she really enjoys the nasal canula, she likes all that junk off her face. She is so big, and we are so close to having our dream come true by bringing her home!
This Saturday is the big walk in Akron, and we are so honored for all of you who ordered shirts, bought raffle tickets, and made generous donations. We are so grateful to you all. The shirts look so great, I ordered Josie a little onesie that matches our shirts, but hers is hot pink camo.. Go figure! Anyone who wants to go Saturday is more than welcome, it's not to late.
I will have plenty of pictures to post.
Until then , please continue to pray that she comes home soon!
Thanks to all of you who have kept follow on her miracle journey, we can't wait for you all to meet her!

Tuesday, May 5, 2009

Tuesday

Wow, what an exciting couple of days. Josie has done GREAT! She is doing nasal canula for three hours and then c-pap for three hours, alternating like that all day.. She loves the nasal canula, and she is eating from a bottle once a day..... She loves her bottle so much, I will be glad when they let her eat with it every feeding, they just want to take it slow, and I completely agree. We are almost there.. She will be coming home soon, I just know it.
I am heading to bed, I have not slept good in the last three months, and finally today for the first time, I have taken time to just sit and look back. It has been a long three months, and Josie has stayed sooooo strong.. I am going to relax, and try to sleep tonight! I'll update more in the morning.... Please continue to pray........ We're almost home!!!!!!

Sunday, May 3, 2009

Sunday

Well, today was a big day for Josie. She got to eat her first bottle today, YEAH.......
She ate 5 cc and then she was tired, so they gave the rest through her ng tube, but that is a very big step for her..... Also, she is finally wearing big girl diapers (Newborn), no more preemie diapers.... HA HA!!!
She is doing great with the nasal canula, still alternating, but that's ok, we are making progress. She will be home in no time!
Tomorrow is going to be a hard day. The little boy across the hall, Cooper will be making his journey home to be with his parents tomorrow. Cooper has been there almost as long as Josie, but he never encountered any problems, other than the prematurity itself. We have gotten very close with him and his family, so it will be hard to watch then go, but our turn is coming, slow but sure, and that's all that I can ask for.... As long as she comes home, she can take her time, because once she gets home, were never going back.......
Please continue to pray for her, I can't wait for you all to see her....

Friday, May 1, 2009

Friday

Wow, it's already May 1st. I should still be pregnant for 11 more days. Hard to believe that little Miss Josie will be 3 months old in 11 days also. She is doing well. She weighs 5 pounds 6.6 ounces. She started alternating back and fourth from c-pap to nasal canula again today, and she has done ok so far. It had just been a long 3 months, and we're just ready to have our little girl home.
I stayed home with Easton and Dusty tonight, and my Mom and Dad went to spend some time with Josie this evening. They love to go, they have her spoiled already! She definitely loves her Nan and Pa!!
Tomorrow is our baby shower, suppose to rain, so that will be nice. NOT! We are having a baby shower/ cookout... My sister-in-law and I just got off the phone, she is trying to figure something out so in case it does actually rain, and with the way that the last few days have went, it would be pretty promising...
I will take tons of pictures for Josie so that she can see her baby shower one day. LOL
It will be nice to just sit and visit, but I just wish that she could have been here, but if things would not have went crazy and her and I would not have gotten sick, she wouldn't be here yet anyways.... Can you tell today is one of those bad days.
Well, that's all I have for now, I will update some more as I get it. Please continue to pray!!!